Partnering with a genetic counselor or genetic specialist to help set clear expectations for patients before and after genetic testing is critical1
Genetic counselors and you:
a valuable partnership

Genetic counselors can1,2:
Help determine which is the most appropriate test for your patient and family
Answer questions about the testing process
Explain the results to your patients and their families
Facilitate family member testing
Refer you to resources that could help your patients
Offer emotional support and understanding
Some inherited retinal diseases may share similar symptoms with other eye conditions that do not have a primary genetic etiology.11 A genetic test may more precisely confirm your patient’s diagnosis. Genetic counselors can partner with you to determine the best course of action for your patients.1
From identification to clinical trial eligibility
Early genetic testing allows you to detect inherited retinal diseases sooner, and uncover more possibilities for your patients, such as potential treatments or clinical trials.12,13

Find a genetic counselor near you Partner with a genetic counselor to create a care plan that's right for your patients. Use this link to find your trusted partner in eye care.
Locate a genetic counselorAffordable genetic testing is available
Genetic testing may be available through your patients’ insurance. Also, genetic testing at reduced or no cost may be available to so many in need, thanks to initiatives such as*:
Foundation Fighting Blindness’ My Retina Tracker Genetic Testing Program
*Listed program is US-only.